Friday, September 11, 2009

Return to Children's Hospital

Yesterday we drove to Little Rock for Brayden's swallow study.

Back at the NICU:

We were so fortunate that Dr. Arrington (the doctor God used to heal B) was working! He and Sayward (the world's best nurse) came out to see Brayden, and talk to us for a little bit! (Hi Melissa from WI - I'm doing a shout out for your Dad!):

Then we headed down to B's test...which is where the fun began...
Not that fun - that was B playing with his socks. The fun I'm talking about is the fact that our appointment got moved to Sept 9 of NEXT year! What?! I had called Wednesday because I had a bad feeling about this appointment so I wanted to confirm it. Everything was confirmed for yesterday at 1:30.
Well, they had cancelled us and had no openings! So we ended up waiting....


And waiting...Mom bought B a Scout dog - he's an icon at the hospital. Everyone took turns entertaining him and now I have further proof that he really is the best baby. He handled 8 lonnnng hours in the car and many more sitting in the hospital without issue!
Finally, the radiologist agreed to stay late and do the test at 4:30. Unfortunately, Brayden did not pass as much as we hoped he would though he improved. Everytime he has any liquid I have to thicken it until it's the consistency of honey. Now, he moved up one level to the consistency of nectar. We will make another appt for April/May and then we are hoping he can just take straight liquid (all of this was because of his silent aspiration).
We finally got home and went to bed around 10:30. Thanks for all of your prayers!

9 comments:

Lauren Kelly said...

Thata boy, such a trooper!! :)

Becky said...

He is so precious! I love that little smile...I know he's going to be just fine! God will always watch over him :)

Heather said...

What a sweetie! Sorry about the study...and the WAIT! Oh my...what are people thinking?!?!? Waiting with a little one is TOUGH!

Guy and Julie said...

I can't believe you've had so much trouble with scheduling--that's crazy! He is such a good baby. And yea for some progress! Silent aspiration is a tricky little beast, I'm glad he's healthy and doing well!

The Irish Lass said...

So glad that everything worked out in the end. I am amazed that a doctor agreed to stay late for you, what a rare find, and an enormous blessing! And he improved on his swallow study, that's awesome! By the way, I LOVE LOVE LOVE the matching father-son outfit you guys had going on there, WAY too adorable. What a cute family- beautiful on the inside and the outside.

Jared and Kate said...

I'm sorry to hear you didn't have better results! My son suffers from very severe reflux that causes respiratory distress so I feel your pain! Even on heavy doses of medication, it's barely controlled at 18 mos!

Megan L Hutchings said...

Little B is such a trooper for being so good for such a long period of time!

It speaks volumes about you as a mother :)!

The Charton's said...

Just wondering what the site is to the sextuplets (I think) that are in TX. I saw you took the link down from your blog.
Thanks,
Shelley

rae said...

I went to school and church with Sayward! Small world!! I haven't seen her in years. Glad to know she is such a good nurse. I'm glad B's swallow study was better!

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