Saturday, January 24, 2009

Team Brayden - Part 2

We got our Team Brayden tee's in!

The front says "Team Brayden, Phillipians 4:13" and has the ACH logo on it:


The back says "TEAM BRAYDEN PRAYER WARRIORS" and has the verse printed on it:


Today they let me give Brayden his bottle...but he was seriously mad after having his lung treatment and being moved around and he refused to eat it:
Here is a pic of Brayden with his tee:
Overall today was a very good day for Brayden...he just no longer has an interest in taking his bottle. The nurse said that babies who have had PPHN normally take awhile to get used to the bottle. The good thing is that he is properly digesting all of his food and being able to take all of his feedings. Tomorrow he should be off all meds and off his nasal oxygen tube. His nurse practitioner predicted that he would be here about 5 more days...mainly our obstacle now is feedings.

Many of you have asked for an address where you can send things...We really, truly do not need anything and it is so very sweet of you to ask. However, if you would like to send Brayden an email (it goes through the hospital) you can do so here :
If you would like to make a donation to ACH in Brayden's honor (it would benefit the ACH Foundation, and the many families who need your support) you can find information on how to go about that here: http://www.archildrens.org/foundation/how_help/memorial_honor.asp
They will send Brayden a card letting him know that you have given in his honor.
We've received so many kind emails and we have them all printed for Brayden's baby book so that we can show him when he is older how many people (that both do and do not know him) his life touched and how many sent up prayers on his behalf. It is so, so special to us and we want him to be able to see and understand what a life changing time this has been...not just because of his illness but because of how many people - people that we don't even know - have cared enough about us to pray for his recovery and what a difference they have made in all of our lives.
Tonight I was thinking about a lot of the families that we sit in the waiting room with everyday. Some of them have babies who have been and continue to be much, much sicker than Brayden was. Some of them have already been here for 3, 4, 5+ months. Some sleep every night in the waiting room. Being a parent of a NICU baby is hard enough, but I can't imagine going through what some of them go through, and I ask you to remember all of the NICU parents in your prayers tonight.
Thank you for all you've done for us. We appreciate you so much!

37 comments:

Mel said...

Hi Jenna, I found you from Kelly's Korner.... Been following your blog for a few months now. Brayden is SO CUTE & I am so excited he is getting healthy! Congratulations on a beautiful baby boy!

Kweku and Laura said...

I'm oh so glad you were FINALLY able to hold your baby boy and feed him!

Kristi said...

That is great news. I remember the day we got to finally feed our twin baby girls their first bottle while they were in the NICU. It may take him a few days but he will get use to it. I am still praying. Hang in there a little longer, you will soon be holding your baby boy at home with no nurses watching every move you make.

Heather said...

I am so happy to hear that he is doing so well! I can't wait to read that he is going home! My baby boy was in the NICU for 17 LONG days but I thank God that it was only 17 days and not months like some of the other parents had to endure. It is so hard to be without your baby. I love reading updates on sweet Brayden and he is such a cutie pie! We will continue to pray for Brayden and the rest of your family!
Hugs and prayers,
Heather~ On the Homefront

The Allens said...

We are continuing to pray for Brayden, your family and all of the NICU babies. Thank you for shining a light for God's Kingdom.

Michelle said...

Congratulations on the wonderful progress Brayden is making!!! He is living proof that prayer DOES work!! I will continue to pray for your family and all of the other babies that need prayers so desperately.

AnneGirl said...

Little Brayden's t-shirt is awesome! It's really great that you have so many people supporting you during this stressful time. It seems funny that big (relatively in the NICU) babies have a hard time eating. My family had a difficult time understanding the concept. They didn't know how to eat before they were born sick & it takes the typical newborn at least a few days to learn how to eat so of course it's not a one bottle process. It takes a few days but in no time Brayden will be sucking down bottles & growing into that team t-shirt! He's been thru so much in so little time, it's amazing. In no time the three of you will be at home! Thanks for continuing to keep us all updated.
~Annette & William

Pascha said...

I am not sure how I found your blog but I do want you to know that I believe that the Lord was surely involved!
I have prayed for your sweet boy since I found out about him. I am so grateful that he is doing better and that you can rejoice in his healing! Praise the Lord!

Anonymous said...

I am praying faithfully for your family. God has something so special in store for Brayden! Thank you for being a witness to so many people!
Love and prayers,
Your Sister in Christ

~aj~ said...

We are absolutely thrilled that Brayden is doing so well. Praise God!!!

Hope these next few days go really well and that you have a safe trip back to NWA!

Katie said...

Hey Jenna...felt I needed to leave you a comment! I've been reading your blog for awhile and should have commented months ago. I had a baby boy in September. I've been praying for your sweet Brayden.

My blog is private...but I'd love to add you if you send me your email address...katiehiggins1@hotmail.com (I know you have more important things to do right now!)

Jane-Jane said...

fyi....there are companies that will put your blog (comments to) into a book form. i'm sure you can search and find their names. this would be a great addition to the baby book.

i have lost count of the number of babies that i have prayed for while they were in the nicu or picu....it is an honor to pray for families, esp when your little ones are so ill.

Brayden's mom said...

Things are sounding GOOD!!! I just realized our Brayden's have the same intials too (BPW) WOW! Anyway I am so glad that he doing better everyday!

sw said...

Praise God he is well enough to be mad....I like the sound of that.
I think about you often ( even though I don't know you ) How you will treasure holding that sweet baby, feeding him, bringing him home etc..a lot of things some new moms just take for granted..you will treasure them, what a blessing. Thank you for updating all of us...you have a lot going on, so it is so kind of you to let us know how things are going so we can continure to pray for you...

Heather said...

Oh, Brayden is so adorable! I will be praying now specifically for his feedings! I am SO HAPPY that things continue to go well and that you could be home in a week!!!! :) God is good!

Brandy said...

I can only imagine how hard this has been on you, and others in similar situations. I pray for strength for all of you.

I'm very happy to hear Brayden had another good day!! Keep it up!!

Ruthie said...

So thankful that your sweet boy is healing. Will be praying about those bottles!!! I have tears in my eyes as I think of all the other NICU babies and families. Praying for you all.

Ruthie

Jenn said...

I have been reading your blog for a few months and I just have to say that your boy is absolutely precious!!! We have been praying for Mr. Brayden and for you all. Every night my girls ask, "How is Brayden and Harper today?" It is always so good to report the many answered prayers! We will continue to pray. God is so good!!!

Love the t-shirts :)

Kristin said...

I haven't checked your blog for a few days, and then I checked tonight and was overjoyed at what progress he's made! It was so neat to see the pictures of his eyes open, having his diaper changed, and being fed. So precious!! I will continue to pray for your family! Praise Him!

Mandy said...

I am so glad to hear how well little Brayden is doing!! Your t-shirts turned out soo cute! Praying that the feedings will go well and you guys will be out of there in no time!

Amanda said...

The T-shirts are great!!! I love them! What a great testament of faith to the other parents and medical staff in the NICU.

Sorry Brayden was a difficult eater for you. Hopefully tomorrow will get better.

You're ability to look beyond your own recently turned upside down world and ask for prayer and help for other families is awe inspiring. Thanks for the link!

Hope you get a good night's sleep. Before you know it you and hubby will be responsible for all those round the clock every three hour feedings! :)

gail said...

Just a few short days and you will all be home. I am so happy for you.

The Carter Family said...

So thrilled that Brayden is improving!! He is just precious! Will keep y'all in our prayers!

Jessica said...

Oh Jenn! The shirts are just perfect!

Susie Harris said...

Go Brayden!!! Keep up the good work~

Alex and Jill said...

The shirts were such a great idea. Even though I don't have a shirt, know that I'm on Team Brayden and I'm praying on his behalf! :)

((HUGS))

Mandy Gramkow said...

Jenna,
Stumbled along your blog...so glad I did, so I can also be a prayer warrior! I had to write for this posting because we had people praying for Team Gramkow (our last name). Our daughter Ellie was born at 28 wks gestation and we were in the NICU for 71 days. Sure a long and stressful time, but God is good and she's now home and 9 lbs.! So please know that we know similar things you're going through and are praying, praying, praying! NICU babies have a special place in my heart after Ellie's experience! http://elliegramkow.blogspot.com
Blessings,
Mandy

Rachel E. said...

I am so glad to hear that Brayden is continuing to do well. It is a privilege to be able to pray for him and to be a part of his story...which is God's story, of course! Will be praying for his continued healing & for him to get used to the bottle quickly.

Rach said...

What awesome news!! I am so glad you got to hold him and love on him some. Here's to going home soon! I will continue to pray for him.

Kendra said...

LOVE the shirts!! Can't believe you all might be home as a family of 3 in 5 days! PRAISE THE LORD!!

Ann said...

I've been reading since Angie posted a prayer request for Braden. He is so handsome and covered in so many prayers. That picture of you holding him brought me to tears. God bless you and keep you in His hand.

Barb said...

You all are in my prayers and I am so happy for you that each and every day is getting better,great news that you will get to take your sweet little man home soon.He is so cute....Barb

My name is Megan... said...

I've been keeping up with you guys and I'm SO glad Brayden is getting better! Love the shirts. God is so good! I'll keep praying for you guys :)

Vandi said...

Jenna,
I just wanted to say how much your story has touched me. Your baby boy is so sweet. I will be praying for him and your family. It is so awesome how much God is working in your life. God IS Good! I wish you continued strength.
Vandi

~Mrs. Guru~ said...

Love the shirts! We will keep you guys in our prayers!

Tessa said...

so great to hear that you finally got to feed him his first bottle.

Susan said...

Bless you, Jenna, for knowing that you have already been richly blessed with everything Brayden needs, yet wanting to spread the blessings to others. Your parents raised a very compassionate, sweet, unselfish girl. You will be a wonderful mother. You are in continual prayers for Brayden to improve faster than ever, and for you to be on your way home soon. He's a very lucky little boy to have such terrific, loving parents. (Remind him of that when he's a teenager... :0)
Susan
Lake Saint Louis, MO

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