Sunday, February 1, 2009

Drama King

This is Brayden's "your taking too many pictures of me with the flash on" face. Or, as Chris refers to it, the "No paparzzi please" face!


Brayden with Grammy and GrandDaddy:

Brayden attempting to be sneaky and pull out his NG tube:

Brayden had a good day today! Chris got to give him his bottle and he took the largest amount yet - 30ml's! After that feeding they upped his amount to 52ml's! He had ZERO residuals and NO SPIT UP'S!!! Yay! Now we just need to get him to his full feed amount (they will then pull out the PICC line) and get him to take all of his feeds through the bottle and we can go home! He had a few temper tantrums today but as the nurse said, "Congrats...you now have a normal baby!"
Several of you asked what formula they have put him on - it's called Neocate. And his other reflux med is Prevacid...I can remember it now because I think "prevent acid."
Thank you all so much for your prayers for Brayden and all of the other NICU babies! The baby that is now in Brayden's old bed is not doing well. He was started on ECMO (what Brayden was going to have) and his brain began to bleed so they've had to pull him off ECMO before finishing the treatment. His parents are doing very well considering...they have an AMAZING faith and are such a testimony to so many. Please keep E's family in your prayers.
A little side note...one of Brayden's nurses (from when he was very ill) came to check on us today. She told us that Brayden was closer than we ever knew to having ECMO. Apparently, before we arrived one morning, the ECMO team had been called in to set up because his blood gasses had gotten low again. They had actually been there, getting ready to start ECMO and his #'s started improving again. They didn't want to tell us about it until he got better. We KNOW your prayers have made the difference for him! THANK YOU!!

34 comments:

Anonymous said...

Praise God for such a wonderful report! God truly is working in this little guy's life! I have tears of joy in my eyes.. I will keep praying for more good news.. will check in tomorrow night..
Love,
Your Sister In Christ.. Bryant AR

Lilly, Matt, and Sara said...

Yay! We are glad to hear he is doing better. Who knew eating was so tricky?? He is such a trooper! We are still praying and praising god for his progress.

Rachel said...

Way, to go Brayden! Keep up all the good work on drinking and you can go home and all the doctors can leave you alone.

Let your mommy and daddy get some rest too!

Love and prayers
friends of the Flemings
Rachel and Emma

Ashley said...

Oh thats so wonderful!! Go Brayden!!

Kristie said...

Thank you Jesus for this little miracle we call Brayden. May he always remain close to you all the days of his life. May his mom and dad always set a christian example for him. May he always use this hospital stay as a testionmany to what God can do for others.

Praise God. I am so glad to see him doing so well.

I will be praying for all of you~~

Kristie

Heather said...

Can't wait til the day (soon!) when you get to bring that sweet little boy home! Still praying!!!

Heather said...

He is such a cutie! Glad to hear things are going well! Praying that they continue to get better so sweet Brayden can go home!
Hugs and prayers,
Heather~ On the Homefront

gail said...

What wonderful news about his eating. He is such a sweet little boy.

Thank you for the pictures and update.

Tracy said...

I love the paparazzi photo! We have a similar one of Sam. I love remembering how tiny his hands were!!

Tiffany said...

Amazing!! Brayden has been in our family prayers....So glad God has healed his tiny body.

Jen said...

That Prevacid is great! I took it while pregnant and was able to survive my eighth month with no heartburn. I thought I'd heard that they prescribed it for babies before, and now I'm sure I did.

So happy to see a happy baby boy there!

Mark and Courtney said...
This comment has been removed by the author.
Erin said...

Still praying and still so glad to hear the news is good...I know people are following and praying via a button on my blog. May the news continue to be good!

Kendra said...

We will keep praying!!! Praying for Baby E and his family too.

creative gal said...

YAY!!!! GOD is SO GOOD!!

Tonya Ingram said...

Oh, the time is getting so close to when you all will be home enjoying your little Brayden. I'm so excited for you. Praise GOd!

L2L said...

PTL, our prayers continue to be lifted up to the Great Healer for Brayden and also now E. Thank you for the updates not only on Brayden but also his little buddies in NICU.

Lisa said...

Looks like Brayden has some proud grandparents. He looks like he is a loved little boy. So happy to hear that he is doing well. PRAISE GOD!! I will keep E's family in my prayers as well as all of the other little NICU babies.

Hugs,
Lisa

Michelle said...

So glad to see that your little guy is doing so well. I've been praying for him and all of the other NICU babies each and every day!

Char said...

PRAISE GOD FOR SUCH A WONDERFUL REPORT!

AnneGirl said...

Glad to hear that Brayden is making progress in the eating department. Once he's off of the methadone & over the withdrawl from those narcotics things will really start moving along. Unfortunately those drugs which keep them sleeping for so long are so well tolerated in big babies :) Keeping Baby E in my thoughts, life is so precious. Love the pictures, you can sure tell Brayden is well loved!
~ Annette & William

Leanne said...

God is Good! Just wanted to let you know we in Kentucky are still praying for Brayden!

KristiJ said...

What awesome news! He is such a little miracle baby, and it has been so amazing to see God work through Brayden. It won't be long now before you all get to go home together!

Cristina Calk said...

Hi Jenna, I found your sight through my friend Alyson. Brayden is such a cutie! I am so happy that he is doing better and we are praying for him. I hope that you are able to take him home soon.
Cristina

Mrs. Dunbar said...

Every time I read of Brayden's improvements it just brings tears to my eyes. I hope he eats a ton today. Praise God.

Emily said...

Brayden gets cuter every single day....:) So presh! Lit a candle at church for him this week:) it will burn all week:) This is going to be a great week for Bray... I can feel it:) Actually every week has been.. continues to be a lil fighter:) Yeah! How are you feeling, doing???

Kristy and Greg said...

Okay, I will admit it..I am a blog lurker! You dont know me from Adam, but I have a 6 month old little boy that has battled reflux from day one. It is ever changing! Please email me if you have any questions or concerns...I have become quite the expert!

Hailey said...

Praise Him for He is good.

Still praying in NC.

The VanBruwaene's said...

I have been reading your blog, and praying for your son daily, my daughter was also put very unexpectedly in the NICU after her birth, She is now a healthy 8 mo. old. praise the lord!!! My daughter is also on NeoCate (I do Breastfeed but she takes NeoCate as a supplement.) I wanted to let you know that asap (since you don't have a million and one things to do already) you should contact your peditrician or the NICU head and have them write a letter of Medical Necessity and have them fax it straight to you Ins. Co. along with a perscription. NeoCate is a really expensive formula that you can only get from a pharmacy or on home delivery (this is how our ins co pays for it). The only reason I tell you this is that my DH and I went through a lot of undo headache b/c we didn't have this done before we left the hospital. I am so happy for you that he is doing so well and please know Prayers are comming from our home to you everyday!!! you may e-mail me if you have any quesstions also :)

Chic Runner said...

So happy that he is doing so well! Soon you will be home and have a wonderful healthy little family! I will keep you in my prayers still for more recovery.

Susie from Bienvenue said...

Just look at those sweet little chunky cheeks.... what a cutie~ Im still praying and asking for health...and home,smile. I know once yall make it back home it will all feel so right! Keep up the faith and the wonderful updates...we'll keep praying.Go Brayden!!!!

Judy said...

What a testimony this little guy has! Thanks for sharing how God has specifically answered prayers! Still praying that he improves and gets stronger every day!

Lisa said...

Jenna--

So glad to hear that things are going good. I will keep checking on your sweet drama king. I will be praying that you get to take him hme soon.

Barb said...

Cute,cute,cute....Barb

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